Sick much? and also I wanna brag on God, cause He deserves it!

Things have been so busy (and so tiring) the last 3 weeks (or has it been 4?… 5?) that there hasn’t been much getting blogged. It’s not so much that I don’t think about the blog, or posting about this or that… it’s just I’ve been doing a lot of “I’ll post tomorrow” and “I’ll finish x, y, and z and then post” kind of thinking about the blog.

I didn’t really anticipate using this blog as a means to update anyone on things going on around here in any kind of family newsletter kind of way, but it seems that the last few posts have ended up that way. I’m going to sink real low and pull a “it’s because my brain has been too sick to think/do anything else” with the posts problem.

Since the posts have taken the newsletter-y turn to an extent, I suppose I should continue that to an extent, just in case there actually is a lone reader out there somewhere following along. I’d hate to leave them hanging going “ohmigosh! She has Lyme and got some meds and thinks the kids have it…WHAT HAPPENS NEXT?!?! Did she ever find out about the kids? Did she ever get better? What about the whole freakin’ out about going to a dr thing? Or the telling her family and folks about what was going on?”

Of course, I don’t really expect that anyone is following along. And certainly if they are, they are doubtless NOT concerned to the extent of sitting on the edge of their seat with bated breath to know what happens next…

BUT I’m living in a reality of my own choosing at the moment and so I’m going to go with the whole exciting melodramatic scenario and make-believe that there really is a valid reason for me to continue to ‘update’ in the dreaded newsletter-y fashion.

Thus…the long awaited (humor me and edge forward on the seat, would you?) update of the last few weeks…

*drumroll*

I’ve had 2 appointments with my Lyme doctor so far. One week apart. I go back in next week for the 1 month check-in. It will be interesting on so many levels.

I never did list a complete rundown of all my symptoms/problems because that would be TOO boring and complainy but suffice it to say there are/were a lot. Before going in for that initial appointment I kinda figured I had at least one of the infamous co-infections of Lyme (Lyme in this case referring specifically to the infection of the borrelia burgdoferi bacteria as opposed to a more generic all-encompassing name for the condition of multiple infections of which the Bb is only one). I highly suspected…to the point of pretty much took it for granted… that I also was infected with bartonella (one strain is responsible for an illness commonly referred to as “cat-scratch fever”). At the initial Lyme appointment, my doctor decided to test for some co-infections, but in an effort to save me (the uninsured and BROKE) some money opted to NOT test for bartonella since my symptomology (is that actually a word? it should be…) was so strong for it. He decided that if I was ok with treating based on symptoms (i.e. based on a clinical diagnosis) then, in a sense, the testing for bartonella was unnecessary. I don’t think, though, that he actually wrote bartonella down as a guaranteed. Semantics, I guess.

Anyway, I digress. I had blood pulled and sent off to be tested for only 2 different co-infections. There are many, MANY more possible (even outside of the bartonella), but for now anyway, we were only testing for 2. Erlichia (or HME- Human Monocytic Erlichia) and Babesia (specifically just the babesia microti strain… there are many strains but the test only looks for the one…). I also had a CBC done to check my kidneys and liver.

Now… it doesn’t seem like there is a point, but there actually is…

I’ve had 2 appointments, but I’ve spoken with my dr on the telephone (yes the DOCTOR how awesome is that?!?) twice since my last appointment.

Lemme back up (only the teensiest amount) to catch-up on what happened between the blood draw and the first phone call…

Aches, new meds, tired-so-tired, brain-fry, July 4th at Bro3’s (shout-out to my wonderful snow-buddy… LOVED the whole thing… you did great at hosting, gal!) complete with exaggerated startle reflex (by-the-by… exaggerated startle reflex + fireworks = heart-that-feels-like-it-just-may-EXPLODE), more aches, more new meds, more tired. Absolutely no grocery shopping, very VERY little cooking/cleaning/laundry/etc, and only a teensy bit of crocheting and a little MythBusters (thanks Netflix!) thrown in.

Ok, that covers the 2wks between the appt and the phone call that shook things up a bit, sotospeak…

The phone actually woke me up that day and it was my doc. Wow, I thought… the DR called with the test results. A positive and another positive. Hmmm… The Erlichiosis was already being treated with the doxycycline I’d been given, but the babesiosis? Not so much. Babesia is a malaria-like parasite. In the same sense that borrelia is a ‘cousin’ to syphilis, so babesia is a ‘cousin’ to malaria. Its presence means the probability of needing to add a whole different class of meds to my cocktail at some point…anti-malarials.

Remember I said I never threw out a whole list of symptoms, but that it would be long if I did? Well now it’s beginning to make sense as to WHY… I now have 3 different ‘for-definite-because-the-test-even-came-up-positive’ infections and 1 ‘symptoms-are-such-that-its-presence-is-so-obvious-we-don’t-really-NEED-to-test-right-now’ infection on top of that. That makes 3 big-bad bacterial infections and 1 malaria-like infection. Sheesh! No wonder that list would be so long and varied, huh?

Anyway, doc said at the next appointment we’d look at my symptoms again (re-assess, kinda, to see how the antibiotics, etc are working out) and if they’re not all being addressed we may add the anti-malarial. My initial thinking the first few days after that phone call was that even with the positive for babesia, the anti-malarial meds were probably still months away since it wasn’t currently responsible for any of my symptoms. This, however, was before I did much looking at babesia symptoms. The only ones I was really thinking of were night sweats and air hunger (feeling like you can’t get enough air)…neither of which I have or have had any time recently.

Then I did a little more looking into the babesia symptoms and discovered that some of my new-ish symptoms the last couple of weeks or so (lightheadness/dizzy, loss of appetite, nausea, base-of-head headaches…) could very well be the babesia rearing its ugly head. So the next appt. should be interesting on that note…

I said I talked to my dr twice. That was the first phone call. The second needs some other updating first…

I think I had mentioned that I had gotten the new pediatrician to sign the orders to test Matt for the Lyme, but that Meagan’s first appt with the new ped wasn’t for another week or two, so she still needed to be tested. The week of Meagan’s appt, the kids both ended up sick with the chest congested, asthma stuff. In calling to get them a sick appointment (to possibly end up on a short course of steroids and antibiotics) I discovered the ped. was on vacation that week. We tried to get them in to Urgent Care and that was a disaster. We ended up just giving them neb treatments at home and they’re doing much, much better now. Anyway! I cancelled Meagan’s check-up appt. that week because I thought she’d be seeing a dr at Urgent Care… and anyway I didn’t want the fill-in… I wanted the actual ped… because of the whole issue with the Lyme testing.

Well, the next week when I still hadn’t heard from the ped’s office on Matt’s test results by Wed, I called to check. I figured it’d been 3+ wks by that point, so I needed to do a little squeakin’ perhaps to get things movin’ again. They’d look into it and get back with me.

Turns out the results HAD come in the week before, but the fill-in doc didn’t know what to make of them or do with them or what-have-you, so they didn’t call. The ped. got them out and read them and lo and behold… he came up positive. I’m so shocked…NOT! haha

Doc didn’t really know what to do about it, though, and since she knew I was seeing a Lyme doc suggested I have him look at Matt’s results. Our kids’ insurance being what it is, though, that would N-E-V-E-R work as far as any kind of ‘official’ look-at-and-treat, so I suggested that perhaps the ped could call him for info and/or suggestions on what to do or where to go for info on what to do.

Today my dr called (yea HIM) again. Said he’d gotten a phone call and he’d passed on a little info along with directions on where to find more. He said the ped was going to send Matt to a dr who specialized in infectious diseases, but the reality is most of those docs don’t treat long or well enough (IF they even concede that you could, in fact, have Lyme since we don’t live in… you know… Connecticut. Those ticks must be very obliging to respect state borders or something, huh? UGG). Anyhow. My dr also said that it sounded like the ped would be treating Matt soon. He was basically REALLY shocked and REALLY surprised and dare I say… really EXCITED that this ped here in our little podunk town was actually… maybe… going to look into this and learn and TREAT.

I went about ‘business’ for the day (that means I called my mom…again… more on that in a min.), totally figuring ok… in a couple of days we’ll get a call from the ped’s office to make an appt and bring Matt back in to talk about what to do. I figured it would take at least that long for her to be able to get started on the looking into things.

Imagine my surprise, then, when the phone call at 15min till 5pm was NOT one of the kids’ friends, but was in fact the ped’s office calling to say that the dr had talked to my dr and what pharmacy should they call the scripts for the 2 different antibiotics into?

WOW! How cool is that? =)

Meagan’s check-up is this comin’ Monday so I’ll be able to at least briefly ‘check-in’ with the dr about Matt then and tell her way THANKS, while talking about getting Meagan started on treatment also of course.

Now, I said I’d talk more about Mom in a min, but I think for tonight I will leave that updating off. Why? Because this post is already long enough and I want/need to do this instead…

PRAISE THE LORD!!!

I don’t want to go any further without making good and sure that anyone reading and going “wow, what an amazing set of good fortune/coincidence” is fully aware that it is SO MUCH MORE than that. It is the work of an amazing, wonderful, powerful, loving God. Nothing less.

God has been leading me through all this from the get-go. From my first looking up my symptoms online, through giving Lyme a second glance, finding a doctor to sign the orders, finding a doctor to treat me, and now finding a doctor for the kids and ever-so-much-more in between! In so many big and little ways. Big scary leaps of faith like my going to a doctor for the first time in nearly 10yrs and telling my mom what was going on even though I was terrified of her reaction. Little, tiny, but-oh-so-important-and-specific details like exactly what bands need to show up positive and exactly what words/phrasing to use at the dr’s office and exactly what date to go and shirt to wear and a billion other things.

This whole health/Lyme/etc. journey for myself AND the kids has already involved a lot of prayer on my end… and I’m so thankful for it… a lot of guidance and answered prayers on the Lord’s end.

I can’t even begin to fully or adequately express just how blessed my family and I have been… and continue to be. ALL the glory belongs to the Lord Jesus in all of this. Again…

PRAISE THE LORD!

Advertisements

0 Responses to “Sick much? and also I wanna brag on God, cause He deserves it!”



  1. Leave a Comment

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s




Click to see posts written on a certain date

July 2008
S M T W T F S
« Jun   Aug »
 12345
6789101112
13141516171819
20212223242526
2728293031  

%d bloggers like this: