Archive for August, 2009

It’s Invisible Illness Week… who knew?

Unfortunately that is exactly the problem with invisible illnesses. They are the ones that cause devastating, debilitating effects, but to others if they find out the patient is ill, would say… They have _____… who knew?

The CALDA blog called Touched By Lyme had an interesting entry recently… “TOUCHED BY LYME: 30 things you don’t know about Lyme disease” Here’s mine—

30 Things About My Invisible Illness You May Not Know

1. The illness I live with: Lyme and other tick-borne infections
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: birth – 1978
4. The biggest adjustment I’ve had to make is: to not volunteer to help do things that tax me physically
5. Most people assume: Lyme plays itself out in a few weeks; sooner if you get a few days of antibiotics
6. The hardest part about mornings are: first getting out of the bed
7. My favorite medical TV show is: Mystery Diagnosis but I only see it infrequently because I can’t afford cable.
8. A gadget I couldn’t live without is: my shower seat!
9. The hardest part about nights are: getting to sleep around the pain and anxiety
10. Each day I take 42 pills & vitamins.
11. Regarding alternative treatments I: have not tried any
12. If I had to choose between an invisible illness or visible I would choose: VISIBLE, one that SCREAMS I’m sick
13. Regarding working and career: I can’t work
14. People would be surprised to know: how much pain I have and how often I am bedridden.
15. The hardest thing to accept about my new reality has been: I can’t do things I want to do or used to do.
16. Something I never thought I could do with my illness that I did was: go to junior church camp as a counselor!
17. The commercials about my illness: are non-existent.
18. Something I really miss doing since I was diagnosed is: waking up, going through the day, going to bed… without having to stop and take a bunch of pills.
19. It was really hard to have to give up: homeschooling
20. A new hobby I have taken up since my diagnosis is: sleeping
21. If I could have one day of feeling normal again I would: would not fully know it, as I’ve been ill since birth.
22. My illness has taught me: I have to take care of myself in order to take care of my family. Also, how to go to a doctor and talk to him about ME.
23. Want to know a secret? One thing people say that gets under my skin is: it must ‘all be in my head’ since Lyme is ‘cured’ by a few days of antibiotics. My doctor isn’t looking to cure me. Just get me into remission.
24. But I love it when people: ask how I’m doing and actually want to know the truth.
25. My favorite motto, scripture, quote that gets me through tough times is: God will not put on us more than we can handle. Jesus will help me through.
26. When someone is diagnosed I’d like to tell them: as much as I can about what to expect in the coming months, and that yes, it WILL get better… eventually.
27. Something that has surprised me about living with an illness is: how totally it affects every little thing you OR your family do.
28. The nicest thing someone did for me when I wasn’t feeling well was: prayed for me and told me they were.
29. I’m involved with Invisible Illness Week because: Most of my family (parents, brothers, children, myself)and some dear friends of mine all have one or more invisible illnesses.
30. The fact that you read this list makes me feel: blessed.

I’ve read through some of the others and one thing that I have to agree with them on (but I answered differently) was that most people think I am ‘normal’ or ‘not sick anymore’ – if they ever knew I was. These infections mess up and take over so many different things in the body it takes months, years in most cases, to be ‘not sick anymore’. I am doing so much better than I was a year ago, but I am nowhere near ‘not sick anymore’.

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Updates, a surprise, and some great shopping deals!

Thought I’d give an update of both how Rachel (the new bunny) and our cats Samson and Delilah were getting along, as well as an update on Mom and Dad’s new house. Oh and some other stuff, too. lol

Yes, it’s another one of those mixed posts with a little bit about a lot. Some sort of planned randomness, I suppose. hehe

The three animals are all doing just fine. Well better than fine, actually. We put the rabbit cage on the floor in the living room temporarily. We can leave the cage door open all night while we sleep or all day while we’re gone. The cats watch the bunny and LOVE to lay right up as close as they can get to her in the cage, but they don’t ever actually go up TO her. Rachel, on the other hand, will go up and sniff the kitties if she wants (and if they don’t jump backwards which is the norm), but mostly she just completely ignores the kitties. She (Rachel) is loving being able to explore instead of being in that little cage 24/7 and she’s also quite pleased with the first change we’ve made to her diet/litter/habitat/etc. In this case it was making timothy grass available to her at all times. Oh boy does she love that stuff. And of course she gets a chunk of carrot or apple once a day, too.

Mom and Dad were finally able to close on their house last week. They got the keys either Wed or Thurs, I can’t remember. On Friday she got hold of the city to turn the power and water on and was told they couldn’t because their meter base was not in the proper position. It was ‘red-tagged’ and they were going to have to get and electrician (licensed and registered to work in the city) to put in a new meter base and weatherhead and whatever else that stuff requires.

Since then we’ve been working, working, working on all the different little projects (and 1 big) that Mom and her crew wanted to get done before they move in, as well as trying to get hold of an electrian. We’ve just about finished painting both boys rooms. J’s is in gray with black trim and 2 big horizontal black stripes all the way round, and R’s in a butternut squash soup/puree color with gold glaze on top and American barn red trim. Both are looking really, really good!

We’ve also been painting the pantry. It somehow got missed when they whitewashed EVERYTHING when they put the house on the market. It was pretty icky! =( So, we’re painting. Right now it is a very light shade of tan, actually closer to coffee with a LOT of cream in it, and the shelves are the palest of pale blues. It is so pale it is almost white. Her pantry is a big pantry, but it’s not walk-in and there’s not a light, so she wanted light colors. Tomorrow we’ll be texturing the walls with the blue, a hot pink, and a hot orange; and the shelves with the ecru(?), the hot pink, and the hot orange.

Also we’ve done things like install a carbon monoxide detector (haven’t gotten the smoke alarms up yet), replaced all the locks, put up the American flag, installed a new shower head and toilet seat, and tried to get all the windows open after having been painted shut with the white paint, and who knows what else. My brother M (28) got one to open but his elbows popped the glass and shattered it. Praise the Lord he had only 3 teensy, teensy little nicks! Last time one of my brothers broke a window (J) he fell through and got cut up bad. I think he had 22 staples altogether.

So the window was replaced. The big project is getting Mom’s new kitchen flooring in. It’s a roll-out vinyl. Well, she went to putty up the slight cracks and holes and what-not in the existing flooring so they wouldn’t transfer through to the vinyl and she discovered the old self-adhesive tiles were actually peeling up. So we had to take that layer off. A friend came over to help and she started scraping stuff up and didn’t stop with the first layer. She pulled up ALL the layers down to the plywood subfloor (now covered in icky, tarry glue). Now it’s all gotta come up to make stuff even… which means there’s been a LOT of floor scraping/tearing out. =)

Today an electrician came out (in answer to Mom’s and my own prayers) that was able to get the job done today in like 1hr. He had originally thought it would take 4-6hr! All that’s left before we can have light to work with in there is for the inspector to come out in the morning and then the electrician to connect something or another; it’s supposed to take like 5min.

Now, another topic. J is turning 17 tomorrow (Wed), and I decided since his room is kinda car garage themed to get him a garage nuts/bolts/etc holder. One of those with like 5 million little drawers. All they had was metallic blue so I just got through painting it gloss black. Then I went to Tractor Supply and bought a bunch of weird little hardware things. Then I went to WalMart grocery shopping (more on that in a min) and got him some Snickers bars and a Bag of chicken nuggets jerky (though that won’t fit…). Everything will be stuck in one of the drawers. I’ll probably throw some things in from around here, too. Mom’s getting him a peg board. How cool is that?!

Matt was going to go shopping with me tonight. On the way out, he spotted a kitty on our porch. I stepped out and it started coming towards us. It came right up to me and rubbed and asked to be petted. She was soooo skinny. =(   No collar of course. She had to be starved, but we’d been out of cat food for 3 days! =( Go figure! The twins ate up a big ol’ can of pink salmon until I could get to the store (tonight) but now there was nothing. She was sooo pretty and sooo loving and sooo hungry, I begged Mike to let me keep her.

He said yes!! =) She’s  gray and white. She has a white face, chest, belly, and both her front legs and the most of her back legs are white. She has the the gray back end and a little on the top of the back legs, back, tail, and the top of her head and ears. She has a very light pink nose and the prettiest pale green eyes ever. Also, she has like a thin line of black outlining her eyes so she looks like she’s wearing make-up! LOL We brought her in and the kids fed her some lunch meat until I could get back from the store with kitty num-nums.

She’s in my room for now. I got her a small litter box and a pink collar when we went shopping. We put food and water in there and the poor thing keeps eating. She’s still a kitten, old enough to be weaned, but not grown yet. I’d guess probably about 3-4mo old. She’s in my room for now because Lilah was hissing at her. Not Samson so much. I figure we’ll introduce them all slowly and so she is locked IN my room and the twins are locked OUT. I’m not overly worried about Lilah. She hissed at Samson for a couple of days after he got back from the vets. Of course this is a new kitty altogether, but I think they’ll all get along great.

At Wal-Mart I shopped and shopped. I’d worked hard at planning this trip (about 3hr worth)  because I was going to get some GREAT deals. Here’s my break down…

*Savings due to price matching with other stores – approx. $28.60 (I don’t remember the original price on a couple of things, so I estimated them)
*Savings due to coupons$36.55

Total savings – $65.15 !!

Here are a few of my favorites…

  • Ziploc container packs – on sale at IGA for $1. I had 5 cpns for $1.50/2 and 2 cpns for 55c/1.  So I paid 25 cents ea. for 10 packs, and 45 cents ea. for 2 of them.
  • 1 subject spiral notebooks – on sale for 1 cent (limit 3) at either Office Max or Depot. So I got 3 for a total of 3 cents.
  • Candy bars (Snickers, Twix, Dove, 3 Musketeers) – on sale for 2/$1 at CVS. I had 4 cpns for $1/2 and 1 cpn for BIGI. That gave me 8 free, and I paid 25 cents ea. for 2 of them.
  • Luzianne Tea – on sale for $1 at Diamonds and I had 2 cpns for 60c/1. I paid 40 cents ea. for 2.

Talk about GREAT deals! Woohoo! I was so excited. I did got over the groc budget for this week by $19, but I’m going to take it out of next weeks. I could NOT pass up deals like this! lol


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